Tied to a bathroom

I am a year and 8 months out from treatment.  I am pretty much tied to being near - quite near - a bathroom.  Control is limited.  Has this been the experience of most of you?  I would like to be able to plan a trip but am concerned that I will be in trouble if I try.  Any advise?

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Hi Jeanie!
I am almost 7 years out and to be honest urgency is an issue for myself and many on here. Mornings for me are the worst typically. I also take one or two immodium on occasion... especially if I am traveling,etc just to tamp things down a bit. For the first year or so I was taking one almost daily...now just on occasion. I must say I never wait...if it gets like I may have to go I head straight to a bathroom. No putting it off. It's a new normal for sure but luckily no accidents so far 🤞.
Take care.♥️
Sara
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I am afraid to take Imodium for fear of constipation. It isn't usually a problem but when it is it has been awful. I think it is especially bad because of the lack of sphincter elasticity. I quess I could try a half Imodium. I agree, mornings are the worst and I do have accidents about every 2 weeks.
Constipation hasn't been an issue for me...but maybe even try a half to see if it just slows things down a bit?

I have used the "half" approach many times and it does work. The pills divide quite easily. If I am headed out in the morning I take a half pill before bed.
Sara, Christine like this comment
Yes, new normal I’m afraid. I’m six years out and need to stay near my bathroom at least a couple of hours in the morning. Sara’s advice about keeping immodium handy. Even half a tab can help me if I absolutely have to be somewhere in the morning. After six years though I’ve pretty much adjusted. Good luck to you Jeanie!
Easterly, Christine like this comment
I’m 4 years out and the urgency issues are getting fewer and farther between. Like the others, the morning is the most risky time. I bought one of these (OXO go potty) and keep it in my car for emergencies. I’ve had to use it a few times, and it was a lifesaver.

OXO Tot 2-in-1 Go Potty for Travel - Gray

https://www.amazon.com/dp/B071GV1VYY/ref=cm_sw_r_cp_api_i_k9zVEb5GEHRMJ
Until about a you put little over a year ago, this was my issue as well. I am 5 years out. I stopped all my supplements except a probe ionic and I am much better now. Take 2 or 3 Imodium in the morning. It tends to slow it down
HOWDY JEANIE, AS MANY ON HERE STATE...FIRST COUPLE OF HOURS AFTER GETTING UP ARE USUALLY HOVERING ROUND THE TOILET. FROM AROUND 6AM TO ABOUT 9AM WHEN I LEAVE FOR THE OFFICE, I HAVE ALREADY HAD 2-4 BOWEL MOVEMENTS. I WILL TAKE THE DOGGIES UP AND DOWN THE SIDEWALK ON MY BLOCK JUST TO GET THINGS MOVING AND IT SEEMS TO HELP. EVEN NOW AT 20 MONTHS OUT---JUST LIKE YOU I WAS DIAGNOSED IN LATE JUNE/JULY 2018-- I STILL HAVE RATHER SOFT STOOLS AND TAKE A ANTI DIARREA PILL EVERY NITE. I NOTICE IF I DON'T EAT VEGGIES I GET CONSTIPATED. I HAVE HAD ONE NEAR ACCIDENT AND JUST BARELY MADE IT INTO THE RESTROOM AT A RESTAURANT BEFORE IT GUSHED OUT...SO NOW I MAKE SURE I AM EMPTY--!
My body is finicky; I tend to constipation, so I take Magnesium Oxide 250mg everyday. That keep things going, but I must say, I do give my mornings up to luxury only. I'm good, with planning after 10am. I could make that 9am but that require shifting sleep & getting up earlier.
Luckily, I'm retired, and I can do that.
But, yes; when majic happens, it's a run!!!
Hopefully you will figure out what helps.
Hugs!
A tiny bit of Metamucil might help, it helps both diarrhea and constipation. I would start with 1 measuring teaspoon per am in liquid, followed by a large glass of water. It sounds counterintuitive, but the fiber takes up the liquid. Also a probiotic at bedtime could help. I am 6+ years out and rarely have issues, but once in a while it's not pretty...
Hi Jeannie, this is a common problem for us. I have sometimes had an accident just on the short walk from my bicycle to the ward where I work. If I have the urge to go, I must go within about 3 - 5 minutes. I used to take Imodium too, but don't need it anymore.Mornings are my toilet time, after that's done I'm safe for the day. Great subject this, my poop occupies my thoughts every single day!
Eventually you need to make that trip, but just take supplies and be ready. After a while you will still have the supplies but notice you probably don't need them.
My bathroom issues seem to be tied to what I've eaten. Trial and error is key, including diet and how often and how much Imodium is necessary.
I wish my wife would come on and write about her experiences but she doesn't. She has a very strict routine. Food triggers her needing to go so breakfast is important. She also does a daily enema for management. There are days that when it wants to linger longer she'll take an Imodium or two to turn it off. Most days it all works but there are still those wild card days and it does take 1-2 hours of her life. She does a lot of reading while sitting.
Oh my, so glad to see this post. Thought I became an afternoon/night person by myself. My colon owns my mornings and I think my colon likes the power. Well, it wins, darn, but Colon, yes, you own my mornings but my friends here have convinced me that Imodium will now become my friend and your enemy. I need to take a little power back, not often, but on those days when I need my morning without fear of having BM.
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July 14, 2018

San Antonio, Texas 78218

September 21, 1946

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Anal Cancer

June 12, 2018

Stage 3A

Yes

Fluorouracil (5-FU)

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